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Susac Syndrome
13 min read
Also known as: Retinocochleocerebral syndrome · RED-M syndrome · Susac · vasculitic encephalopathy · brain-eye-ear syndrome · microvascular disease
Your Body Is Speaking
It often begins quietly. An ear that suddenly becomes muffled, as though stuffed with cotton. A patch in the visual field that isn't quite clear anymore. Headaches unlike any you've known before — deep, pressing, persistent. Added to this, a feeling harder to name: you are no longer quite present. Your thinking feels slowed. Your sense of self seems shifted. People who know you say: you've somehow become different.
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