Osteogenesis Imperfecta

Bones are meant to hold. They are the quiet framework on which everything rests — the inside, the outside, the entire movement of a life. They are what you do not feel as long as everything is fine. The self-evident. The foundation you can forget exists.

Osteogenesis imperfecta makes precisely this self-evidence impossible. The bones that in other people carry out their duty stably and robustly are here delicate, pliable, vulnerable. An awkward grip, a fall, sometimes even a cough — and something that should hold breaks. The framework on which a life ought to stand is permeable to what others do not even notice.