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Friedreich's Ataxia
12 min read
Also known as: Friedreich's disease · spinocerebellar ataxia · hereditary ataxia · neurological coordination disorder · hereditary gait disorder · Morbus Friedreich · hereditary ataxia · loss of coordination · progressive ataxia · Friedreich nerve disease · cerebellar disease
Your Body Is Speaking
Your legs no longer obey you as they should. Your hands no longer find the target reliably. Your speech becomes heavier, your gait unsteady, your heart grows tired. What happens automatically for others — standing, grasping, speaking, moving — becomes for you a daily negotiation with a body that seems to be developing its own laws.
Medicine explains to you what is happening: a genetic mutation causes certain nerve pathways in the spinal cord and cerebellum to slowly degenerate. Coordination is lost, not because you are doing something wrong — but because the lines through which your will is transmitted to your body are becoming thinner. That is the biological truth. It holds. And it is not the whole truth.
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